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01000naa a22002652 4500 |
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DE-627 |
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20231226024601.0 |
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cr uuu---uuuuu |
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231226s2021 xx |||||o 00| ||eng c |
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|a 10.1016/j.ejr.2021.02.004
|2 doi
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2 |
|a pubmed24n1150.xml
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|a (DE-627)NLM345226410
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|a (NLM)36004204
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|a DE-627
|b ger
|c DE-627
|e rakwb
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| 041 |
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|a eng
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| 100 |
1 |
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|a Bongomin, Felix
|e verfasserin
|4 aut
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| 245 |
1 |
0 |
|a Patient-reported outcome measure of the quality of life in Ugandans living with autoimmune rheumatic diseases
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| 264 |
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1 |
|c 2021
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| 336 |
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|a Text
|b txt
|2 rdacontent
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| 337 |
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|a ƒaComputermedien
|b c
|2 rdamedia
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| 338 |
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|a ƒa Online-Ressource
|b cr
|2 rdacarrier
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| 500 |
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|a Date Revised 27.08.2022
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|a published: Print-Electronic
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|a Citation Status PubMed-not-MEDLINE
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|a Aim of the work: To assess the patient reported outcome measure (PROM) of the quality of life (QoL) of patients with autoimmune rheumatic diseases (RDs) attending two tertiary care rheumatology clinics in Uganda
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|a Patients and methods: Patients with a confirmed diagnosis of RD and receiving disease modifying anti-rheumatic drugs (DMARDs) were studied. Health index and overall self-rated health status were assessed using the EuroQol 5-dimension (ED-5D-5L) questionnaire tool
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| 520 |
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|a Results: 74 patients were studied: 48 (64.9%) had rheumatoid arthritis (RA), 14(18.9%) systemic lupus erythematosus (SLE), and 12(16.2%) had other RDs; spondyloarthritis (n = 5), systemic sclerosis (n = 3), juvenile idiopathic arthritis (n = 2), and idiopathic inflammatory myositis (n = 2). Their mean age was 45 ± 17 years and 69 (93.2%) were female. 14(18.9%) were on concomitant herbal medication and 26 (35.1%) self-reported at least 1 adverse drug reaction. Any level of problem was reported by 54(72.5%) participants for mobility, 47(63.5%) for self-care, 56(75.6%) for usual activity, 66(89.1%) for pain and discomfort, and 56(75.6%) for anxiety/depression. The mean health index of the patients was 0.64 ± 0.16 and the overall self-rated health status was 58.1 ± 16.7. Patients with SLE (0.74 ± 0.12) had higher health index compared to those with RA (0.60 ± 0.17) or other RDs (0.70 ± 0.1) (p < 0.007). Overall self-rated health status was comparable across clinical diagnoses (p = 0.23). Both the index and self-reported status were better for patients who received private hospital care compared to public hospital (p < 0.0001 and p = 0.01)
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|a Conclusion: There is a substantial negative impact of autoimmune rheumatic diseases on quality of life of patients, especially those receiving care from a public facility in Uganda
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|a Journal Article
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4 |
|a Autoimmune rheumatic diseases
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| 650 |
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4 |
|a DMARDs
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| 650 |
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4 |
|a Health index
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| 650 |
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4 |
|a Patient-reported outcomes
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| 650 |
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4 |
|a Rheumatoid arthritis
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| 650 |
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4 |
|a SLE
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| 650 |
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4 |
|a Uganda
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| 700 |
1 |
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|a Sekimpi, Maria
|e verfasserin
|4 aut
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| 700 |
1 |
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|a Natukunda, Barbra
|e verfasserin
|4 aut
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| 700 |
1 |
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|a Makhoba, Anthony
|e verfasserin
|4 aut
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| 700 |
1 |
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|a Kaddumukasa, Mark
|e verfasserin
|4 aut
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| 773 |
0 |
8 |
|i Enthalten in
|t The Egyptian rheumatologist
|d 1998
|g 43(2021), 3 vom: 02. Juni, Seite 203-207
|w (DE-627)NLM098204491
|x 2090-2433
|7 nnns
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| 773 |
1 |
8 |
|g volume:43
|g year:2021
|g number:3
|g day:02
|g month:06
|g pages:203-207
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| 856 |
4 |
0 |
|u http://dx.doi.org/10.1016/j.ejr.2021.02.004
|3 Volltext
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|d 43
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|h 203-207
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