Pain Experience in Hemophilia Patients : A Hermeneutic Phenomenological Study

BACKGROUND: Pain, as a crucial subsequence of joint hemorrhages in hemophilia patients, is chronic, debilitating, and distracting. This study aimed to describe and interpret pain experiences of hemophilia patients in their lives

Bibliographische Detailangaben
Veröffentlicht in:International journal of community based nursing and midwifery. - 2014. - 4(2016), 4 vom: 28. Okt., Seite 309-319
1. Verfasser: Rambod, Masoume PhD (VerfasserIn)
Weitere Verfasser: Sharif, Farkhondeh PhD, Molazem, Zahra PhD, Khair, Kate PhD
Format: Aufsatz
Sprache:English
Veröffentlicht: 2016
Zugriff auf das übergeordnete Werk:International journal of community based nursing and midwifery
Schlagworte:Journal Article Hemophilia Pain Qualitative research Experience
LEADER 01000naa a22002652 4500
001 NLM265083338
003 DE-627
005 20231224211515.0
007 tu
008 231224s2016 xx ||||| 00| ||eng c
028 5 2 |a pubmed24n0883.xml 
035 |a (DE-627)NLM265083338 
035 |a (NLM)27713894 
040 |a DE-627  |b ger  |c DE-627  |e rakwb 
041 |a eng 
100 1 |a Rambod, Masoume  |c PhD  |e verfasserin  |4 aut 
245 1 0 |a Pain Experience in Hemophilia Patients  |b A Hermeneutic Phenomenological Study 
264 1 |c 2016 
336 |a Text  |b txt  |2 rdacontent 
337 |a ohne Hilfsmittel zu benutzen  |b n  |2 rdamedia 
338 |a Band  |b nc  |2 rdacarrier 
500 |a Date Revised 01.10.2020 
500 |a published: Print 
500 |a Citation Status PubMed-not-MEDLINE 
520 |a BACKGROUND: Pain, as a crucial subsequence of joint hemorrhages in hemophilia patients, is chronic, debilitating, and distracting. This study aimed to describe and interpret pain experiences of hemophilia patients in their lives 
520 |a METHODS: This qualitative study with hermeneutic phenomenological approach was conducted on fourteen hemophilia patients who had been referred to a hemophilia center affiliated to Shiraz University of Medical Sciences, Shiraz, Iran. The study question was "what is the meaning of pain in hemophilia patients' lives? The data were collected through semi-structured interviews and field notes through purposeful sampling. Then, thematic analysis with van Manen's six-step methodological framework was used. MAX.QDA qualitative software package, 2010, was used to analyze the data 
520 |a RESULTS: The three main themes that emerged in this study were "alteration in physical health", "engagement in psychological problems", and "impairment in social relationships". Alteration in physical health consisted of three subthemes, namely "impairment of physical function", "change in body physics", and "disturbance in sleep quality". In addition, two subthemes including "nostalgia of pain in adults with hemophilia" and "psychological distress" emerged from engagement in psychological problems. Finally, "loss of social activity" and "change in relationships" were related to impairment in social relationships 
520 |a CONCLUSION: The present study highlighted alteration in physical health, engagement in psychological problems, and impairment in social relationship as a result of pain in hemophilia patients. Thus, healthcare providers and family members have to pay special attention to these problems. Besides, providing complementary therapy interventions is suggested for reducing these issues 
650 4 |a Journal Article 
650 4 |a Hemophilia 
650 4 |a Pain 
650 4 |a Qualitative research 
650 4 |a Experience 
700 1 |a Sharif, Farkhondeh  |c PhD  |e verfasserin  |4 aut 
700 1 |a Molazem, Zahra  |c PhD  |e verfasserin  |4 aut 
700 1 |a Khair, Kate  |c PhD  |e verfasserin  |4 aut 
773 0 8 |i Enthalten in  |t International journal of community based nursing and midwifery  |d 2014  |g 4(2016), 4 vom: 28. Okt., Seite 309-319  |w (DE-627)NLM243102372  |x 2322-2476  |7 nnns 
773 1 8 |g volume:4  |g year:2016  |g number:4  |g day:28  |g month:10  |g pages:309-319 
912 |a GBV_USEFLAG_A 
912 |a SYSFLAG_A 
912 |a GBV_NLM 
912 |a GBV_ILN_11 
912 |a GBV_ILN_22 
912 |a GBV_ILN_24 
912 |a GBV_ILN_31 
912 |a GBV_ILN_40 
912 |a GBV_ILN_50 
912 |a GBV_ILN_61 
912 |a GBV_ILN_62 
912 |a GBV_ILN_72 
912 |a GBV_ILN_138 
912 |a GBV_ILN_271 
912 |a GBV_ILN_285 
912 |a GBV_ILN_288 
912 |a GBV_ILN_350 
951 |a AR 
952 |d 4  |j 2016  |e 4  |b 28  |c 10  |h 309-319