Phenylketonuria patients' and their parents' acceptance of the disease: multi-centre study

Purpose Phenylketonuria (PKU) still poses a therapeutic challenge for patients and medical professionals. The aim of the study was to assess both patients' and their parents' acceptance of the disease. Methods The study included 218 PKU patients and 178 parents of PKU children who were enr...

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Veröffentlicht in:Quality of Life Research. - Springer Science + Business Media. - 25(2016), 11, Seite 2967-2975
1. Verfasser: Witalis, Ewa (VerfasserIn)
Weitere Verfasser: Mikoluc, Bożena, Motkowski, Radoslaw, Szyszko, Justyna, Chrobot, Agnieszka, Didycz, Bozena, Lange, Agata, Mozrzymas, Renata, Milanowski, Andrzej, Nowacka, Maria, Piotrowska-Depta, Mariola, Romanowska, Hanna, Starostecka, Ewa, Wierzba, Jolanta, Skorniewska, Magdalena, Wojcicka-Bartlomiejczyk, Barbara Iwona, Gizewska, Maria
Format: Online-Aufsatz
Sprache:English
Veröffentlicht: 2016
Zugriff auf das übergeordnete Werk:Quality of Life Research
Schlagworte:Health sciences Behavioral sciences Social sciences Applied sciences