Quality of life and emotional distress in patients and burden in caregivers: a comparison between assisted peritoneal dialysis and self-care peritoneal dialysis

Purpose Assisted peritoneal dialysis (PD) involving caregivers allows more patients to get started on homebased dialysis with good clinical outcomes, but evidence on patient-reported and caregiver-reported outcomes is lacking. This study aimed to compare assisted PD versus self-care PD on quality of...

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Veröffentlicht in:Quality of Life Research. - Springer Science + Business Media. - 25(2016), 2, Seite 373-384
1. Verfasser: Griva, K. (VerfasserIn)
Weitere Verfasser: Goh, C. S., Rang, W. C. A., Yu, Z. L., Chan, M. C., Wu, S. Y., Krishnasamy, T., Foo, M.
Format: Online-Aufsatz
Sprache:English
Veröffentlicht: 2016
Zugriff auf das übergeordnete Werk:Quality of Life Research
Schlagworte:Economics Health sciences Behavioral sciences
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100 1 |a Griva, K.  |e verfasserin  |4 aut 
245 1 0 |a Quality of life and emotional distress in patients and burden in caregivers: a comparison between assisted peritoneal dialysis and self-care peritoneal dialysis 
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520 |a Purpose Assisted peritoneal dialysis (PD) involving caregivers allows more patients to get started on homebased dialysis with good clinical outcomes, but evidence on patient-reported and caregiver-reported outcomes is lacking. This study aimed to compare assisted PD versus self-care PD on quality of life (QoL) and psychosocial outcomes for patients and caregivers. The effect of PD modality [automated PD (APD); continuous ambulatory PD (CAPD)] in relation to self-care or assisted care was also examined. Methods A cross-sectional sample of 231 PD patients [142 self-care (57 APD/85 CAPD) and 89 assisted care PD (45 APD/44 CAPD)], 72 caregivers of assisted PD patients and 39 family members of self-care PD patients completed the Kidney Disease Quality of Life Short Form (KDQOLSF), World Health Organisation Quality of Life Instrument-brief and the Hospital Anxiety and Depression Scale. Caregivers and family members completed the Lay CareGiving for Adults Receiving Dialysis questionnaire and Zarit Burden Interview. Results Case-mix-adjusted comparisons indicated comparable QoL in all dimensions with the exception of physical SF-12 (p = .001) and the KDQOL effects of kidney disease in favour of self-care PD. Levels of anxiety (9.72 ± 4.90; 8.25 ± 5.22) and depression (8.63 ± 3.80; 6.35 ± 4.76) were equivalent in assisted PD and self-care PD, respectively. Assisted PD caregivers reported more task-orientated duties (p = .007), yet levels of perceived burden were equal to those reported by family members of self-care PD. Conclusion Our findings of mostly comparable patient and caregiver outcomes in assisted PD and self-care PD suggest that caregiver burden and QoL should not be a barrier to using assisted PD. 
540 |a © Springer International Publishing 2016 
650 4 |a Economics  |x Economic disciplines  |x Labor economics  |x Employment  |x Occupations  |x Medical personnel  |x Caregivers 
650 4 |a Health sciences  |x Medical treatment  |x Renal replacement therapy  |x Dialysis  |x Peritoneal dialysis 
650 4 |a Health sciences  |x Medical treatment  |x Renal replacement therapy  |x Dialysis 
650 4 |a Behavioral sciences  |x Sociology  |x Human societies  |x Social institutions  |x Families  |x Family members 
650 4 |a Behavioral sciences  |x Psychology  |x Clinical psychology  |x Mental illness  |x Mood disorders  |x Depressive disorders 
650 4 |a Health sciences  |x Health and wellness  |x Health status  |x Quality of life 
650 4 |a Health sciences  |x Medical treatment  |x Renal replacement therapy  |x Dialysis  |x Peritoneal dialysis  |x Continuous ambulatory peritoneal dialysis 
650 4 |a Health sciences  |x Medical conditions  |x Diseases  |x Endocrine system diseases  |x Kidney diseases 
650 4 |a Health sciences  |x Health and wellness  |x Health outcomes 
650 4 |a Behavioral sciences  |x Psychology  |x Cognitive psychology  |x Emotion  |x Emotional states  |x Emotional distress  |x CLINICAL AND POLICY APPLICATIONS 
655 4 |a research-article 
700 1 |a Goh, C. S.  |e verfasserin  |4 aut 
700 1 |a Rang, W. C. A.  |e verfasserin  |4 aut 
700 1 |a Yu, Z. L.  |e verfasserin  |4 aut 
700 1 |a Chan, M. C.  |e verfasserin  |4 aut 
700 1 |a Wu, S. Y.  |e verfasserin  |4 aut 
700 1 |a Krishnasamy, T.  |e verfasserin  |4 aut 
700 1 |a Foo, M.  |e verfasserin  |4 aut 
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