Patient Governance in a Patient-Powered Research Network for Adult Rheumatologic Conditions

Background: Patient-Powered Research Networks (PPRNs) are a unique type of patient-powered patient registry for patient-centered outcomes research requiring that stakeholder engagement play a key role in governance (eg, research guidance and decision making). The purpose of this report is to describ...

Ausführliche Beschreibung

Bibliographische Detailangaben

Veröffentlicht in:	Medical Care. - Lippincott Williams & Wilkins, a business of Wolters Kluwer Health, 1963. - 56(2018), 10, Seite S16-S21
1. Verfasser:	Nowell, W. Benjamin (VerfasserIn)
Weitere Verfasser:	Curtis, Jeffrey R., Crow-Hercher, Rachelle
Format:	Online-Aufsatz
Sprache:	English
Veröffentlicht:	2018
Zugriff auf das übergeordnete Werk:	Medical Care
Schlagworte:	research governance Patient-Powered Research Network (PPRN) patient-centered outcomes research (PCOR) stakeholder engagement arthritis/rheumatology