Forever Small: The Strange Case of Ashley X

I explore the ethics of altering the body of a child with severe cognitive disabilities in such a way that keeps the child "forever small." The parents of Ashley, a girl of six with severe cognitive and developmental disabilities, in collaboration with her physicians and the Hospital Ethic...

Ausführliche Beschreibung

Bibliographische Detailangaben
Veröffentlicht in:	Hypatia. - Indiana University Press, 1986. - 26(2011), 3, Seite 610-631
1. Verfasser:	KITTAY, EVA FEDER (VerfasserIn)
Format:	Online-Aufsatz
Sprache:	English
Veröffentlicht:	2011
Zugriff auf das übergeordnete Werk:	Hypatia
Schlagworte:	Health sciences Philosophy Behavioral sciences Biological sciences Social sciences Economics


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245	1	0	\|a Forever Small: The Strange Case of Ashley X
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520			\|a I explore the ethics of altering the body of a child with severe cognitive disabilities in such a way that keeps the child "forever small." The parents of Ashley, a girl of six with severe cognitive and developmental disabilities, in collaboration with her physicians and the Hospital Ethics Committee, chose to administer growth hormones that would inhibit her growth. They also decided to remove her uterus and breast buds, assuring that she would not go through the discomfort of menstruation and would not grow breasts. In this way she would stay "forever small" and be able to be carried and handled by family members. They claimed that doing this would ensure that she would be able to be part of the family and of family activities and to have familial care. But the procedure has raised thorny ethical questions. I wish to explore these questions philosophically by bringing to bear my own experiences as a mother of a grown daughter with severe cognitive impairments.
540			\|a © 2011 Hypatia, Inc.
650		4	\|a Health sciences \|x Medical conditions \|x Disabilities
650		4	\|a Philosophy \|x Axiology \|x Ethics \|x Normative ethics \|x Care ethics
650		4	\|a Behavioral sciences \|x Sociology \|x Human societies \|x Social institutions \|x Families \|x Family members \|x Parents
650		4	\|a Biological sciences \|x Biology \|x Physiology \|x Human physiology \|x Human growth \|x Child growth
650		4	\|a Social sciences \|x Population studies \|x Human populations \|x Persons \|x Children
650		4	\|a Biological sciences \|x Biochemistry \|x Biomolecules \|x Hormones \|x Steroid hormones \|x Sex hormones \|x Gonadal steroid hormones \|x Estrogens
650		4	\|a Economics \|x Economic disciplines \|x Labor economics \|x Employment \|x Occupations \|x Medical personnel \|x Physicians
650		4	\|a Philosophy \|x Metaphysics \|x Philosophy of mind \|x Concept of mind \|x Judgment \|x Moral judgment
650		4	\|a Social sciences \|x Population studies \|x Human populations \|x Persons \|x Disabled persons
650		4	\|a Philosophy \|x Axiology \|x Ethics \|x Normative ethics \|x Morality \|x Confronting Dis-Abling Norms
655		4	\|a research-article
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773	1	8	\|g volume:26 \|g year:2011 \|g number:3 \|g pages:610-631
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952			\|d 26 \|j 2011 \|e 3 \|h 610-631