Community Perspectives on Research Consent Involving Vulnerable Children in Western Kenya

Community Perspectives on Research Consent Involving Vulnerable Children in Western Kenya

involving vulnerable pediatric populations in international research requires culturally appropriate ethical protections. We sought to use mabaraza, traditional East African community assemblies, to understand how a community in western Kenya viewed participation of children in health...

Ausführliche Beschreibung

Bibliographische Detailangaben
Veröffentlicht in:Journal of Empirical Research on Human Research Ethics: An International Journal. - Sage Publications, Ltd.. - 7(2012), 4, Seite 44-55
Format: Online-Aufsatz
Veröffentlicht: 2012
Zugriff auf das übergeordnete Werk:Journal of Empirical Research on Human Research Ethics: An International Journal
Schlagworte:community-based research pediatrics sub-Saharan Africa ethics informed consent Kenya Social sciences Health sciences Behavioral sciences Political science mehr... Law Applied sciences Economics
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520 |a involving vulnerable pediatric populations in international research requires culturally appropriate ethical protections. We sought to use mabaraza, traditional East African community assemblies, to understand how a community in western Kenya viewed participation of children in health research and informed consent and assent processes. Results from 108 participants revealed generally positive attitudes towards involving vulnerable children in research, largely because they assumed children would directly benefit. Consent from parents or guardians was understood as necessary for participation while gaining child assent was not. They felt other caregivers, community leaders, and even community assemblies could participate in the consent process. Community members believed research involving orphans and street children could benefit these vulnerable populations, but would require special processes for consent. 
540 |a © 2012 by Joan Sieber 
650 4 |a community-based research 
650 4 |a pediatrics 
650 4 |a sub-Saharan Africa 
650 4 |a ethics 
650 4 |a informed consent 
650 4 |a Kenya 
650 4 |a Social sciences  |x Population studies  |x Human populations  |x At risk population  |x Youths at risk  |x Street children 
650 4 |a Health sciences  |x Medical specialties  |x Pediatrics 
650 4 |a Behavioral sciences  |x Sociology  |x Human societies  |x Social institutions  |x Families  |x Orphans 
650 4 |a Health sciences  |x Medical sciences  |x Medical research 
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650 4 |a Behavioral sciences  |x Sociology  |x Human societies  |x Social groups  |x Communities 
650 4 |a Law  |x Jurisprudence  |x Legal consent  |x Informed consent 
650 4 |a Health sciences  |x Medical sciences  |x Medical research  |x Biomedical research 
650 4 |a Applied sciences  |x Research methods  |x Research studies 
650 4 |a Economics  |x Economic disciplines  |x Labor economics  |x Employment  |x Occupations  |x Medical personnel  |x Caregivers  |x Vulnerable Pediatric Populations in Western Kenya 
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