Assessment of quality of life in children and youth with autism spectrum disorder: a critical review

Assessment of quality of life in children and youth with autism spectrum disorder: a critical review

Purpose To review the use of quality of life (QOL) measures utilised in children and youth with autism spectrum disorder (ASD). Methods Relevant articles were identified through database searches using MEDLINE, CINAHL Plus with Full Text and SPORTDiscus with Full Text via EBSCO Health Database, Psyc...

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Bibliographische Detailangaben
Veröffentlicht in:Quality of Life Research. - Springer Science + Business Media. - 23(2014), 4, Seite 1069-1085
1. Verfasser: Ikeda, Erika (VerfasserIn)
Weitere Verfasser: Hinckson, Erica, Krägeloh, Chris
Format: Online-Aufsatz
Sprache:English
Veröffentlicht: 2014
Zugriff auf das übergeordnete Werk:Quality of Life Research
Schlagworte:Behavioral sciences Health sciences Applied sciences Business Social sciences
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520 |a Purpose To review the use of quality of life (QOL) measures utilised in children and youth with autism spectrum disorder (ASD). Methods Relevant articles were identified through database searches using MEDLINE, CINAHL Plus with Full Text and SPORTDiscus with Full Text via EBSCO Health Database, PsycINFO and ProQuest Health and Medicine (from 2000 to May 2013). Original research articles were included that measured QOL in children and youth with ASD aged 5–20 years. Searches were limited to articles from peer-reviewed journals, in English or German, and those available in full text. Results The search identified 1,165 titles and 13 met the inclusion criteria. The review identified a number of QOL measures used in children and youth with ASD, with the most common one being the Pediatric Quality of Life InventoryTM (PedsQL). QOL measures using self-reports were uncommon, and the reliability and validity of QOL measures were not sufficiently reported for this population. Large discrepancies in QOL scores were found between self-reports and proxy-reports. Despite the differences in study design and methodological quality, there was consistency in the results among studies; children and youth with ASD provided lower QOL scores, particularly for social domains, compared to their healthy counterparts. Conclusions The PedsQL is likely to be an appropriate QOL measure for use in children and youth with ASD. Future research should focus on examining the appropriateness, reliability and validity of QOL self-reports for use in this population. 
540 |a © Springer Science+Business Media Dordrecht 2013 
650 4 |a Behavioral sciences  |x Psychology  |x Clinical psychology  |x Mental illness  |x Childhood mental disorders  |x Pervasive child development disorders 
650 4 |a Health sciences  |x Health and wellness  |x Health status  |x Quality of life 
650 4 |a Behavioral sciences  |x Sociology  |x Human societies  |x Social institutions  |x Families  |x Family members  |x Parents 
650 4 |a Applied sciences  |x Research methods  |x Survey research  |x Survey responses  |x Proxy reporting 
650 4 |a Business  |x Business administration  |x Corporate governance  |x Proxy fights  |x Proxy statements 
650 4 |a Social sciences  |x Population studies  |x Human populations  |x Persons  |x Children  |x Adolescents 
650 4 |a Behavioral sciences  |x Psychology  |x Clinical psychology  |x Mental illness  |x Childhood mental disorders  |x Pervasive child development disorders  |x Autistic disorder 
650 4 |a Health sciences  |x Medical conditions  |x Disorders 
650 4 |a Behavioral sciences  |x Psychology  |x Psychometrics 
650 4 |a Behavioral sciences  |x Psychology  |x Clinical psychology  |x Mental illness  |x Childhood mental disorders  |x Reviews 
655 4 |a research-article 
700 1 |a Hinckson, Erica  |e verfasserin  |4 aut 
700 1 |a Krägeloh, Chris  |e verfasserin  |4 aut 
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