Using the Patient Generated Index to Evaluate Response Shift Post-Stroke

Background: Individualized measures allow for the assessment of health-related quality of life (HRQL) based on areas that are relevant to the person and may prove to be useful for evaluating response shift (reconceptualization of HRQL and change in values). Objective: The objective of this study was...

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Veröffentlicht in:Quality of Life Research. - Springer Science + Business Media. - 14(2005), 10, Seite 2247-2257
1. Verfasser: Ahmed, Sara (VerfasserIn)
Weitere Verfasser: Mayo, Nancy E., Hanley, James A.
Format: Online-Aufsatz
Sprache:English
Veröffentlicht: 2005
Zugriff auf das übergeordnete Werk:Quality of Life Research
Schlagworte:Individualized Health-Related Quality of Life Response Shift Stroke Change Health sciences Behavioral sciences Education Economics Biological sciences Social sciences
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520 |a Background: Individualized measures allow for the assessment of health-related quality of life (HRQL) based on areas that are relevant to the person and may prove to be useful for evaluating response shift (reconceptualization of HRQL and change in values). Objective: The objective of this study was to assess reconceptualization of HRQL and change of individual values among persons with stroke during the first six months of recovery. Methods: The data collection for this study was incorporated into a randomized trial of acute post-stroke care. Individualized HRQL was evaluated at 6 and 24 weeks post-stroke using the Patient Generated Index (PGI). At 24 weeks a semi-structured interview was administered to assess whether verbalizations given by subjects indicated that they had experienced a response shift. Results: Ninety two subjects (61%) had complete PGI information at the 6- and 24-week evaluations, and of these, 46 completed the semi-structured interview. Between the 6- and 24-week evaluations, the domains selected were: the same for 10 (11%) subjects, reduced for 27 (29%), expanded for 11 (12%), and completely different for 44 (48%) subjects. Twenty eight percent (n = 13) of subjects recovering from stroke experienced a response shift as evidenced by the semi-structured interviews. Conclusion: The PGI provides valuable information regarding changes in person's conceptualization of HRQL and values, but the feasibility of using an individualized measure during the first six months post-stroke is limited by the added complexity of completing and interpreting such a measure. 
540 |a Copyright 2005 Springer 
650 4 |a Individualized Health-Related Quality of Life 
650 4 |a Response Shift 
650 4 |a Stroke 
650 4 |a Change 
650 4 |a Health sciences  |x Medical conditions  |x Diseases  |x Cardiovascular diseases  |x Vascular diseases  |x Strokes 
650 4 |a Health sciences  |x Health and wellness  |x Health status  |x Quality of life 
650 4 |a Behavioral sciences  |x Psychology  |x Philosophical psychology  |x Individualization 
650 4 |a Education  |x Formal education  |x Educational institutions  |x Schools  |x Universities  |x Research universities 
650 4 |a Economics  |x Economic research  |x Economic analysis  |x Economic value  |x Valuation  |x Tax assessment  |x Assessed values 
650 4 |a Behavioral sciences  |x Psychology  |x Cognitive psychology  |x Cognitive processes  |x Thought processes  |x Conceptualization 
650 4 |a Health sciences  |x Medical conditions  |x Diseases 
650 4 |a Biological sciences  |x Biology  |x Physiology  |x System physiology  |x Musculoskeletal physiology  |x Locomotion  |x Gait 
650 4 |a Social sciences  |x Communications  |x Speech  |x Speech production  |x Verbalization 
650 4 |a Health sciences  |x Medical sciences  |x Medical research  |x Clinical research  |x Clinical trials 
655 4 |a research-article 
700 1 |a Mayo, Nancy E.  |e verfasserin  |4 aut 
700 1 |a Hanley, James A.  |e verfasserin  |4 aut 
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